topnav

Zach’s Fund

100% of the profits from the sale of the ZaggoCare® system will be donated to Zach’s Fund, for innovative brain tumor research.

Our son Zachary was diagnosed with a diffuse intrinsic pontine glioma in June 2005 at the age of 17 and lost his valiant battle with this deadly disease in September 2007. The difficulty of accepting that our vibrant son had a terminal cancer was exacerbated by learning that despite the deadliness of diffuse pontine gliomas, little public funding is available to find a cure.

Zach Carson

Zach’s Fund was created in 2007 to find a cure for diffuse intrinsic pontine gliomas which are inoperable, malignant tumors in the brain stems of children and are the deadliest of all pediatric cancers with a less than 2% survival rate.

To date, Zach’s Fund has raised over $900,000 for innovative research by Mark Kieran, M.D., Ph.D., Director of Pediatric NeuroOncology at Dana-Farber and his colleagues. In one groundbreaking study, newly diagnosed patients undergo a biopsy, providing live tissue samples for genome analyses, with a goal of unlocking the mysteries of diffuse intrinsic pontine gliomas (“DIPG”). The tumors of these newly diagnosed patients are profiled, allowing the treatment to be tailored to each specific tumor. Patients receive radiation, chemotherapy and/or biologic treatment based on their tumor.

This world renowned medical team believes this study represents the greatest hope of finding a cure for DIPG.

Exciting update: this research has already shown monumental progress, with the team discovering a number of mutations that account for the disease in most patients. Some of these mutations were never previously associated with cancer. The team is now working on treatments for these targets.

Zach’s Fund is the only major funding source in the US dedicated exclusively to this groundbreaking research and treatment protocol.

For more information, visit www.zachcarsonfund.org

Photos of Zach

Zach - 6 months oldZach - 17 years oldZach - 14 years oldZach - 19 years old his final weekZach - 17 years oldZachRoberta, Jake, Paul and ZachZach - 3 years old