Having Alzheimer’s or being the caregiver for a Alzheimer’s patient is overwhelming, scary and often isolating. We hope you find these resources for Alzheimer’s patients and caregivers helpful.
Alzheimer’s Association
800-272-3900
This non-profit provides care and support for Alzheimer’s patients and their families. They are the largest, private, non-profit funder of Alzheimer’s research. The website includes information on a wide variety of topics, including definitions, diagnosis, treatment options, research updates, and clinical trial information. Local chapters provide programs and services, including caregiver support, and help with legal and insurance issues. The telephone hotline (800-272-3900) is open 24/7. The website information is available on-line in Spanish and Chinese. Translated educational materials are available on-line in 15 languages.
ALZ Connected
This site, created by the Alzheimer’s Association, provides a social networking community for patients and caregivers. You can connect with people who understand what you are going through, ask questions and provide advice. There are public and private groups on dedicated topics.
Alzheimer’s Foundation of America
866-232-8484
This non-profit provides education and hands-on services dedicated to improving the life of patients with dementia and Alzheimer’s. The website includes information on a wide range of topics related to dementia and Alzheimer’s, including warning signs, diagnosis, symptoms, treatment options, research updates, and caregiving support. Speak to licensed social workers by phone (866-232-8484; Monday – Friday: 9 am – 5 pm Eastern Time) or submit a question via e-mail. Connect with other caregivers thru teleconference updates and discussions, on-line blogs, Family CareGroups and more. Information is available on-line in Spanish.
Alzheimer’s Speaks
www.AlzheimersSpeaks.com/free-educational-resources
This website provides free access to a variety of resources and tools to help those with dementia live more graciously. They believe accessibility and simplicity are a must when dealing with a chronic illness. The community is inclusive and welcoming, providing information for people with a diagnosis of dementia, family members and friends caring for a loved one, healthcare professionals, researchers, advocates, or people interested in learning more. They welcome user feedback so they can continue to meet the needs of the community.
This Caring Home
This organization is funded by several foundations, including the Weill Cornell Medical College. The site provides information on best practices and home care for patients with Alzheimer’s and dementia. Find videos, photos and animations, along with expert reviews, of home furnishings, smart technologies and home care products all specifically chosen for the needs of these patients. Their Virtual Home lets you explore research-based solutions to home safety and daily care issues. Explore the challenges and solutions for bathrooms, bedrooms, kitchen and dining areas, living rooms, stairs, and outdoors. Their technology allows you to “visit” a room, click on an area within the room, and see videos and tips.
